A Father’s Quest To Help His Severely Disabled Son

From NPR’s All Things Considered:

Credit: St. Martin’s Press, LLC

When he was 8 months old, Walker Brown was diagnosed with cardiofaciocutaneous syndrome (CFC), a rare disorder that left him with severe cognitive, developmental and physical disabilities. By the time he was 3 years old, his father says, his medical chart was 10 pages long.

Now 15, Walker wears diapers and an apparatus on his wrists that prevents him from hitting and scratching himself. Developmentally, his age is between 1 and 3, and he will require constant care for the rest of his life.

Read the story or listen to the interview.

 

Author: Kevin Mulligan

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